Josh's Thoughts
Thank You For Your Support
Dear Friends, I am writing to share some wonderful news. My son Devin is walking, running, and can even ride a bike all by himself. That may not seem all that amazing on its own, Read more…
Josh's Thoughts
A Chance Meeting Left Me in Shock
I don’t always do a great job at recognizing all the amazing things that happen in life, especially day-to-day as they occur. Today however, something happened that left me in complete shock. Devin and I Read more…
Josh's Thoughts
If I Can
if I CAN if it’s unacceptable, I can confront it. if it’s unbearable, I can endure it. if it’s unbeatable, I can defeat it. if it’s never been done, I can be the one. Christ Read more…
Josh's Thoughts
Bring Me to the Payers – The Fight for Access to Exondys51
“The Day” On September 19, 2016, the US Food and Drug Administration (FDA) approved the first ever treatment for Duchenne Muscular Dystrophy. Eteplirsen, otherwise known by its brand name Exondys51, was developed by Sarepta Therapeutics. Read more…